We created the Foundation based on the real life experiences we had with Megan - to help families like ours with the challenges and stark financial realities that diseases like Mucopolysaccharidosis Sanfilippo A (MPS III A) presents.
Did you know that many families must spend hundreds of dollars every month on diapers because insurance won't cover them? Megan could no longer stand/sit in the tub or shower, but a shower chair wasn't covered by insurance.
Many families have coverage for items such as wheelchairs, respiratory equipment, hospital beds, etc., but most still have out of pocket costs of $1,000 or more. Some families spend hundreds of dollars per month on their child's necessary prescriptions. With your support we can help these families!