Megan’s Story
The mission of the Megan Weisenbach Foundation is to provide financial assistance to families with children who have special needs, helping improve their quality of life and supporting them through the challenges they face every day.
Megan was diagnosed at the age of four with Mucopolysaccharidosis Sanfilippo A (MPS IIIA), a rare genetic disorder caused by an enzyme deficiency. This meant that Megan’s body could not properly break down certain sugars, causing them to build up in her cells and progressively affect her health.
Despite the challenges she faced, Megan showed incredible strength throughout her life.
In 2006, Megan underwent surgery to lengthen the ligaments in her ankles in hopes that it would help her walk for a longer period of time. In January 2009, she had a procedure to place a G-tube, which allowed her medications and nutrition to be delivered safely through a feeding tube and reduced the risk of aspiration.
Later in 2009, Megan became wheelchair-bound. Even so, she continued to experience moments of joy and progress. At school, the incredible staff at RISE Learning Center worked with Megan in the therapy pool, where—with assistance—she was still able to walk in the water.
In August 2011, Megan battled pneumonia several times and was admitted to Riley Hospital for Children on three separate occasions. In September 2011, doctors gave Megan’s family heartbreaking news: they were told to take her home and begin hospice care, as she likely had only weeks to live.
But Megan had other plans.
Those weeks turned into months as she continued to amaze everyone around her with her strength and resilience. Finally, on May 25, 2012, with her family surrounding her, Megan earned her angel wings.
Megan's Legacy
While Megan is no longer suffering, her memory lives on in the hearts of everyone who knew and loved her. We believe she is now at peace in Heaven with her Grandpa Bach, Grandma Bach, Uncle Pete, Uncle Joe, Grandma Dorothae, and many others.
We miss Megan every single day and wish we could hug her just one more time. But we are forever grateful for the love, joy, and unforgettable memories she gave us.
Through the Megan Weisenbach Foundation, Megan’s spirit continues to inspire us to help other families facing similar challenges—because every child deserves comfort, support, and the best quality of life possible.
The Weisenbach's - Tom, Theresa, Kayla & Abbey
Great Corporate Partners
Megan's Buddies: Our Story in Pictures
About Us
United by a Common Goal
United by a Common Goal
We created the Megan Weisenbach Foundation based on the real-life experiences our family faced with Megan. Our goal is to help families like ours who are navigating the challenges and significant financial burdens that come with diseases such as Mucopolysaccharidosis Sanfilippo A (MPS IIIA).
United by a Common Goal
United by a Common Goal
United by a Common Goal
Families caring for children with special needs often face significant out-of-pocket costs for everyday necessities. Many spend hundreds of dollars every month on diapers alone because insurance does not provide coverage.
As Megan’s condition progressed, she could no longer stand or sit safely in the tub or shower. Yet even a basic item li
Families caring for children with special needs often face significant out-of-pocket costs for everyday necessities. Many spend hundreds of dollars every month on diapers alone because insurance does not provide coverage.
As Megan’s condition progressed, she could no longer stand or sit safely in the tub or shower. Yet even a basic item like a shower chair—something that greatly improves safety and quality of life—was not covered by insurance.
This is why the Megan Weisenbach Foundation works to provide support and resources to families facing these challenges.
Getting Involved
United by a Common Goal
Getting Involved
Families caring for children with special needs often face significant medical expenses. Even when insurance covers equipment such as wheelchairs, respiratory devices, or hospital beds, out-of-pocket costs can still exceed $1,000 each month. In addition, many families spend hundreds of dollars monthly on the essential prescriptions their
Families caring for children with special needs often face significant medical expenses. Even when insurance covers equipment such as wheelchairs, respiratory devices, or hospital beds, out-of-pocket costs can still exceed $1,000 each month. In addition, many families spend hundreds of dollars monthly on the essential prescriptions their children rely on.
With your support, we can help ease these financial burdens and make a meaningful difference in the lives of these families.
Together, we can provide the support and hope these families need.
Contribute to our Cause!
Contact Info:
The Megan Weisenbach Foundation
5139 Greenheart Drive
Indianapolis, IN 46237
Info@themwfoundation.org